Barry family credit hospice care with giving their son a brighter final chapter

Catherine and Jonathan Hume say Tŷ Hafan children’s hospice transformed their son Daniel’s last months after an occupational therapist suggested the care; Daniel, diagnosed with osteosarcoma at 14, died aged 16 in March 2024. The story highlights gaps in awareness and access to pediatric hospice care in Wales, echoed by a new report describing a fragmented health and care system and the need for earlier, clearer conversations about hospice options. The Welsh government is pursuing a new commissioning approach and funding model to improve access and sustainability across Wales.