Tag

Pompe Disease

All articles tagged with #pompe disease

immigration2 months ago•327 min saved

Detained Father Denied at Son’s Funeral As Pompe Disease Claims His Primary Caregiver

A Texas man, Maher Tarabishi, who has been detained by ICE, was Wael Tarabishi’s sole caregiver. Wael, a 30-year-old with Pompe disease, died after years of muscle and heart complications worsened without his father’s round‑the‑clock care. ICE denied Maher a supervised release to attend Wael’s funeral in Joshua, Texas, leaving Wael to be laid to rest without the person who had cared for him his whole life. The family and their attorney criticized the decision as inhumane, while DHS did not comment on the specifics of the case.

via CNN|

#funeral-denial #ice-detention #immigration

business2 years ago•0 min saved

Sanofi's Partnership with Maze Terminated Amidst FTC Obstacles

Maze Therapeutics CEO, Jason Coloma, expressed personal disappointment after learning that Sanofi terminated their partnership to develop an experimental drug for Pompe disease through a public statement, rather than direct communication. Sanofi cited disagreement with the U.S. Federal Trade Commission's decision to block the licensing deal but decided against legal action, stating it was not in the best interest of patients.

via STAT|

#business #disappointment #maze-therapeutics

business2 years ago•3 min saved

FTC Challenge Forces Sanofi to Terminate $750M Maze Therapeutics Deal

Sanofi expresses disappointment with the Federal Trade Commission's decision to seek a preliminary injunction against its proposed licensing agreement with Maze Therapeutics for the development of MZE001, a potential treatment for Pompe Disease. Sanofi disagrees with the action, stating that it would delay potential advancements and impact patients' lives. As a result, Sanofi has decided to terminate the agreement with Maze Therapeutics. The company remains committed to addressing the unmet needs of the Pompe patient community.

via GlobeNewswire|

#business #ftc #license-agreement

business2 years ago•2 min saved

FTC Halts Sanofi's Monopoly with Rare Disease Drug Acquisition

The Federal Trade Commission (FTC) is seeking to block Sanofi's acquisition of an exclusive license to Maze Therapeutics' therapy for Pompe disease, alleging that the deal would eliminate a potential competitor and protect Sanofi's monopoly in the market. Sanofi currently holds a monopoly on FDA-approved drugs for Pompe disease, charging high prices for treatment. Maze's developmental drug, MZE001, threatens to undermine this monopoly as the first oral medication for Pompe disease patients. The FTC argues that the acquisition would deprive patients of innovative and affordable treatment options, and is seeking a temporary restraining order and preliminary injunction to prevent the acquisition.

via Federal Trade Commission News|

#business #ftc #maze-therapeutics