The Quiet Cost of Caring for a Daughter with Angelman Syndrome
TL;DR Summary
Annie Morgan’s days caring for Ava, who has Angelman syndrome, reveal the mounting emotional and physical toll of long-term caregiving, amplified by a patchwork of support as the U.S. shifts toward family-centered care.
Topics:business#angelman-syndrome#caregiving#developmental-disorders#disabilities#health#mental-health
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