Rare Illness Forces a Mom to Live on $14K-a-Week IV Nutrition

Shayla Talei, a 31-year-old mom of two, lives with Complex Regional Pain Syndrome and gastroparesis, a condition that prevents her from digesting solid food. She relies on total parenteral nutrition delivered through a central line, carries a heavy back‑pack for up to 12 hours a day, and spends about $14,000 per week on nutrition before insurance (roughly $1,000 a day). She documents her daily routine on TikTok to explain the realities of living with these conditions and the costs, while noting insurance helps but she’ll always have some medical debt.