12-year-old UK girl undergoes six rounds of chemotherapy after misdiagnosis
TL;DR Summary
A 12-year-old girl in Plymouth, England, endured six rounds of chemotherapy after doctors misdiagnosed her with Juvenile Dermatomyositis; the treatments were deemed unnecessary when a genetic test at Great Ormond Street Hospital showed she actually has Emory-Dreifuss muscular dystrophy (EDMD), a rare non-cancer condition. The correct diagnosis followed negative JDM tests, and her mother says financial pressures and test choices contributed to the error. The family has spent years in and out of hospital, with limited holidays or accessible housing, and EDMD currently has no cure.
- UK girl, 12, underwent six grueling –and unnecessary — rounds of chemo after misdiagnosis New York Post
- Child put through six rounds of chemotherapy after misdiagnosis The Telegraph
- 12-year-old put through six rounds of chemo after years of misdiagnosis; now she is wheelchair-bound and ‘a ticking time bomb’ The Times of India
- This is little Faye Condon. She was just seven-years-old when she was misdiagnosed and incorrectly endured six rounds of gruelling chemotherapy. 💔😱 Faye was five when specialists categorically told her parents she had a rare autoimmune disease called J facebook.com
- Plymouth Girl Treated for Rare Disease She Never Had With Chemo: Now in Wheelchair and on Night Ventilator International Business Times UK
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