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Autoimmune Disease

All articles tagged with #autoimmune disease

12-year-old UK girl undergoes six rounds of chemotherapy after misdiagnosis
world2 days ago

12-year-old UK girl undergoes six rounds of chemotherapy after misdiagnosis

A 12-year-old girl in Plymouth, England, endured six rounds of chemotherapy after doctors misdiagnosed her with Juvenile Dermatomyositis; the treatments were deemed unnecessary when a genetic test at Great Ormond Street Hospital showed she actually has Emory-Dreifuss muscular dystrophy (EDMD), a rare non-cancer condition. The correct diagnosis followed negative JDM tests, and her mother says financial pressures and test choices contributed to the error. The family has spent years in and out of hospital, with limited holidays or accessible housing, and EDMD currently has no cure.

via New York Post|
#autoimmune-disease#england#medical-mishaps
Even a $2 Million Longevity Regimen Couldn't Prevent Bryan Johnson's Autoimmune Gastritis
science4 days ago

Even a $2 Million Longevity Regimen Couldn't Prevent Bryan Johnson's Autoimmune Gastritis

Bryan Johnson, founder of The Blueprint and Immortals longevity program, reveals he has autoimmune gastritis after more than a decade and roughly $2 million a year in health‑tracking and a 30‑person medical team. The condition destroys stomach parietal cells responsible for acid and intrinsic factor, impairing iron and B12 absorption and risking anemia and nerve damage, with no approved cure yet. Johnson is pursuing experimental immune therapies while noting that wearables and routine bloodwork can miss slow diseases, highlighting the limits of self‑tracking in predicting health outcomes.

via Yahoo|
#autoimmune-disease#autoimmune-gastritis#b12-absorption
Biohacker Bryan Johnson reveals autoimmune gastritis, vows to seek a cure
health4 days ago

Biohacker Bryan Johnson reveals autoimmune gastritis, vows to seek a cure

Biohacker Bryan Johnson says he has autoimmune gastritis, diagnosed in May and disclosed in June; there is no approved cure, with treatment focusing on symptom relief and managing complications as researchers explore new therapies. Johnson and his team plan to pursue experimental approaches to cure, while he continues his high-cost biohacking regimen that includes numerous supplements and a home hyperbaric chamber.

via USA Today|
#autoimmune-disease#autoimmune-gastritis#bryan-johnson
Biohacker Bryan Johnson reveals incurable autoimmune gastritis, vows to keep fighting
health5 days ago

Biohacker Bryan Johnson reveals incurable autoimmune gastritis, vows to keep fighting

Biohacker Bryan Johnson says he has autoimmune gastritis, an incurable condition linked to thyroid disease and iron deficiency. He plans ongoing monitoring (ferritin, iron, B12, gastrin), repeat biopsies, and experimental treatments while continuing his longevity-focused regimen, noting that standard care offers only management.

via New York Post|
#autoimmune-disease#biohacking#bryan-johnson
Stem-Cell Immune Reset Sparks Long-Term Remission in Two NMO Patients
health6 days ago

Stem-Cell Immune Reset Sparks Long-Term Remission in Two NMO Patients

Two 28-year-old patients with severe neuromyelitis optica achieved relapse-free, treatment-free remission for 15–16 years after allogeneic hematopoietic cell transplantation (donor stem-cell transplant) that rebooted their immune systems; one now leads a normal life and has children, the other reports good quality of life with reduced disability. While the approach shows promise, it carries substantial risk and was performed in carefully selected, treatment-refractory cases; larger studies are needed to confirm safety and determine broader applicability.

via ScienceAlert|
#allohct#autoimmune-disease#health
The 'Be a B-Word' Trend: Boundaries, Stress, and the Autoimmune Myth
buzz13 days ago

The 'Be a B-Word' Trend: Boundaries, Stress, and the Autoimmune Myth

A viral trend telling women to 'be a b-word' to avoid autoimmune disease has sparked a debate: while many link autoimmune diagnoses to stress and emotional suppression, experts say there’s no evidence that assertiveness prevents or reverses autoimmune conditions; the conversation highlights gendered emotional labor and the value of healthier boundaries to reduce chronic stress.

via NDTV|
#autoimmune-disease#boundaries#buzz
Joe Manganiello Details 7-Year Autoimmune Health Nightmare in Memoir
entertainment17 days ago

Joe Manganiello Details 7-Year Autoimmune Health Nightmare in Memoir

Joe Manganiello reflects on a seven-year battle with autoimmune illnesses that attacked his skin, thyroid, eyes, lungs and digestive system, causing chronic pain and a life-saving organ amputation; discussed in connection with his upcoming memoir Bloodlines, he says the period was the darkest of his life and hopes his story offers hope to others facing illness.

via E! News|
#autoimmune-disease#bloodlines#celebrity-health
Immune-system reset brings lupus into remission in early UK CAR-T trial
health29 days ago

Immune-system reset brings lupus into remission in early UK CAR-T trial

A CAR-T cell therapy that reprograms the immune system has put lupus into remission in early UK trials, with five of the first six patients in remission for more than 18 months and one showing improvement but a flare at 11 months. The approach destroys rogue B cells by using modified T cells and could extend to other autoimmune diseases, though long-term durability and broader efficacy remain to be seen.

via BBC|
#autoimmune-disease#car-t-cell#health
Mayim Bialik Shares Harrowing GLP-1 Side Effects and Body-Image Struggles
lifestyle1 month ago

Mayim Bialik Shares Harrowing GLP-1 Side Effects and Body-Image Struggles

Mayim Bialik recounts a brutal reaction to a GLP-1 weight‑loss drug after doctors suggested it to ease autoimmune symptoms and menopause. She describes explosive diarrhea, sulfur burps, cramping, vomiting dehydration and other severe side effects that lasted weeks after a single low-dose shot, leading her to stop the medication. The piece also ties her experience to long-standing body-image issues and health battles throughout her career.

via The Daily Beast|
#autoimmune-disease#glp1#health
Rheumatoid Arthritis: More Than Joint Pain—Spotting the Early Signs
health1 month ago

Rheumatoid Arthritis: More Than Joint Pain—Spotting the Early Signs

Rheumatoid arthritis is an autoimmune disease marked by joint pain, morning stiffness, swelling, and fatigue; early diagnosis and treatment with DMARDs and biologics, along with physical therapy, regular movement, sleep, stress management, and an anti-inflammatory diet, can slow progression and protect joints, though symptoms can wax and wane and may include mood changes and other systemic effects.

via Prevention|
#autoimmune-disease#health#joint-pain
Brief Abatacept Therapy Delays Rheumatoid Arthritis Onset for Years
health2 months ago

Brief Abatacept Therapy Delays Rheumatoid Arthritis Onset for Years

A long-term analysis from King’s College London shows that a 12-month course of abatacept in people at high risk of rheumatoid arthritis can delay disease onset by up to four years, with benefits persisting after treatment ends; strongest effects were in those at highest risk identified by specific autoantibodies, and while the therapy does not permanently prevent RA, early immune modulation may lessen future symptom burden and support preventive strategies, with safety comparable to placebo.

via SciTechDaily|
#abatacept#autoimmune-disease#early-intervention