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Trigeminal Neuralgia

All articles tagged with #trigeminal neuralgia

health2 months ago•6 min saved

Ice baths and resilience: a Welsh man’s battle with trigeminal neuralgia

Gerwyn Tumelty, a Pontarddulais man described as living with trigeminal neuralgia—often called the world’s most painful condition—suffered years of severe facial pain before a 2019 neurosurgery relieved the physical agony. While the pain subsided, he faced ongoing mental health challenges, prompting him to adopt routines like twice-weekly ice baths and outdoor challenges to cope and stay focused. His story, supported by the Trigeminal Neuralgia Association UK, also highlights the importance of early diagnosis and ongoing support for affected individuals.

via BBC|

#chronic-pain #health #mental-health

health1 year ago•4 min saved

Living with a Rare 'Suicide Disease': A Survivor's Story

A man known as Josh has survived multiple near-death experiences and battles trigeminal neuralgia (TGN), a condition so painful it's called 'suicide disease.' Despite surviving incidents like being stillborn and a car accident, Josh's TGN, triggered by a sinus infection, causes excruciating pain likened to being burned alive. While he has been symptom-free for 12 years, TGN often requires surgical intervention for relief. The condition affects the trigeminal nerve, causing severe facial pain, and is estimated to have 10,000 to 15,000 new cases annually in the US.

via Daily Mail|

#chronic-pain #health #medical-treatment

health2 years ago•8 min saved

"Professor's 7-Year Quest for Relief from Agonizing Facial Pain"

Allen M. Weiss, a marketing professor, suffered from agonizing cheek spasms for over seven years before receiving a correct diagnosis and effective treatment. Despite consulting multiple specialists, including dentists, oral pain experts, and neurologists, the cause of his pain remained elusive. Eventually, he was diagnosed with trigeminal neuralgia (TN), a rare form of nerve pain affecting the trigeminal nerve. After undergoing surgery to relieve pressure on the nerve, Weiss experienced significant pain reduction, although some residual symptoms remain. The delay in diagnosis and treatment highlights the challenges faced by patients with uncommon medical conditions and the importance of seeking multiple opinions and advocating for oneself.

via The Washington Post|

#facial-pain #health #medical-mystery

health2 years ago•4 min saved

Woman's Facial Pain Leads to Shocking Brain Tumor Diagnosis

Andreea Vanacker, a mother-of-two from Montreal, Canada, was diagnosed with a large benign brain tumor after experiencing electric shock-like pain on the right side of her face. Doctors removed the tumor via surgery, which involved cutting out part of her skull and brain tissue. It took a year for her to recover her strength. Vanacker shared her story to raise awareness of brain tumors and their warning signs, including headaches, blurry vision, losing feeling or movement in a limb, and trouble with balance.

via Daily Mail|

#brain-tumor #health #montreal

health2 years ago•7 min saved

Decade-long brain tumor causes intense facial pain for woman and mother.

A woman woke up with intense facial pain and was diagnosed with trigeminal neuralgia, but an MRI revealed a benign brain tumor that had been growing for 10 years. After consulting with several neurosurgeons, she underwent a successful nine-hour brain surgery to remove the tumor, but recovery was long and painful. The experience made her cherish time with her family and appreciate the importance of artificial-intelligence tools in analyzing complex scans.

via Insider|

#brain-tumor #health #neurologist