The hidden cost of bendy joints: diagnosing and living with hypermobility disorders
The report highlights Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS), conditions marked by joint laxity that cause pain, fatigue, and sometimes digestive symptoms; UK patients often wait 19 to 21.7 years for diagnosis due to fragmented guidance and uneven access to knowledgeable clinicians, with women more affected. It shares personal stories of Vivienne Duval and Luke Grindlay, showing how delays and lack of dedicated care affect daily life and work; experts advocate targeted physiotherapy and broader recognition from health services rather than vague advice.
