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Systemic Capillary Leak Syndrome

All articles tagged with #systemic capillary leak syndrome

Stomachache hinted at a rare pediatric killer: a 5-year-old’s battle with Clarkson’s disease
health1 month ago

Stomachache hinted at a rare pediatric killer: a 5-year-old’s battle with Clarkson’s disease

A 5-year-old on a family vacation in Oregon developed a stomachache and vomiting that rapidly escalated to a life-threatening case of Clarkson’s disease (systemic capillary leak syndrome). The rare diagnosis, typically seen in adults and with few pediatric cases, caused plasma leakage, edema, and distributive shock, leading to the child’s death after extensive life-support efforts. The case underscores how difficult it is to diagnose this condition in children and that there is no established cure, with fundraising supporting the family.

Dad urges vigilance after 5-year-old dies from rare capillary leak on vacation
health1 month ago

Dad urges vigilance after 5-year-old dies from rare capillary leak on vacation

A Colorado father, Viet Vu, shares his family’s tragedy after his 5-year-old son Justin died during a trip to Oregon from the rare systemic capillary leak syndrome (Clarkson’s disease). Justin’s illness began with stomach pain and vomiting, led to hospitalization and multiple antibiotic treatments as doctors searched for an infection, but the cause remained unknown and the boy died five days after admission. The father warns other parents to be aware of this invisible, poorly understood disease, which is especially rare in children.

Oregon vacation ends in tragedy as 5-year-old dies from rare Clarkson's disease
health1 month ago

Oregon vacation ends in tragedy as 5-year-old dies from rare Clarkson's disease

A family trip to Oregon ended with the death of 5-year-old Justin Vu from Clarkson's disease (systemic capillary leak syndrome), a very rare condition that causes sudden blood pressure collapse. Diagnosed after initial concerns for appendicitis or infection, the illness worsened to require life support; Justin died on July 8 despite treatment. The disease is extremely rare in children, with limited documented cases and no known cure, though some therapies can help manage episodes. A fundraiser has raised about $45,000 for the family.

Rare Medical Case: Scuba Diver's Blood Vessels Leak Fluid After Deep Cave Dive
health3 years ago

Rare Medical Case: Scuba Diver's Blood Vessels Leak Fluid After Deep Cave Dive

In a rare medical case, a scuba diver who went on a 100-foot cave dive developed systemic capillary leak syndrome (SCLS), a severe form of inflammation where fluid leaks out of blood vessels. The syndrome was a complication of decompression sickness, commonly known as "the bends." Prompt treatment and recognition of symptoms by medical professionals helped the diver survive and recover in under a week. This case highlights the importance of awareness among physicians regarding potential complications associated with deep diving. However, it is important to note that millions of people dive safely each year without experiencing this syndrome.