Living with Huntington's Disease: Jasmine Demers' Story.

1 min read
Source: The Cut
Living with Huntington's Disease: Jasmine Demers' Story.
Photo: The Cut
TL;DR Summary

Jasmine Demers, who tested positive for Huntington's disease, an inherited fatal genetic disorder, shares her experience of living with the knowledge of how she will die. She discusses her struggles with depression and finding purpose, planning for the future, and the importance of communicating her wishes with loved ones. Demers also talks about using IVF and genetic embryo testing to avoid passing on the gene to her future children. She emphasizes the need for more support and advocacy for those living with the disease and the challenges they face, including insurance and financial planning.

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