health-and-policy9 hours ago
ACT for ALS Reauthorization Passes Congress with One Day to Spare
The ACT for ALS Reauthorization Act passed the US Senate on September 28, 2026, by unanimous consent, just one day before the previous authorization was set to expire. The bill, which extends funding for ALS research and experimental treatments through 2031, has now been sent to President Trump for signature. The passage was driven by intense advocacy from the I AM ALS community and public pressure, including a petition campaign promoted by AEW wrestler Rebel, who is living with terminal ALS. The Muscular Dystrophy Association (MDA) and other advocacy groups are urging the President to sign the bill quickly to prevent a lapse in critical funding for patients with amyotrophic lateral sclerosis (ALS).