EB survivor pushes Medicare study to cover bandages
Shane DiGiovanna, born with epidermolysis bullosa, a rare condition that makes skin as fragile as a butterfly’s wing, helped spur the Shane DiGiovanna Act to require a Department of Health and Human Services study on Medicare coverage of bandages for EB, addressing massive out-of-pocket costs and state coverage gaps; the bill, introduced by Rep. Greg Landsman, seeks bipartisan support and would pave the way for potential coverage mandates if the study finds long-term savings, all while DiGiovanna remains in hospice care with terminal cancer.
