
Dad urges vigilance after 5-year-old dies from rare capillary leak on vacation
A Colorado father, Viet Vu, shares his family’s tragedy after his 5-year-old son Justin died during a trip to Oregon from the rare systemic capillary leak syndrome (Clarkson’s disease). Justin’s illness began with stomach pain and vomiting, led to hospitalization and multiple antibiotic treatments as doctors searched for an infection, but the cause remained unknown and the boy died five days after admission. The father warns other parents to be aware of this invisible, poorly understood disease, which is especially rare in children.






