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Advocacy

All articles tagged with #advocacy

Young mom battles stage 4 colon cancer, urges early screening and self-advocacy
health14 days ago

Young mom battles stage 4 colon cancer, urges early screening and self-advocacy

Brooke Pangrazio, diagnosed with stage 4 colon cancer at 33 (later 35) with liver and lung metastases, says she is “treatable, but not curable” as she undergoes chemotherapy. Her story highlights rising colorectal cancer rates among younger adults, the need for earlier screening, and the importance of self-advocacy—urging others to push for medical evaluation (like colonoscopies) if something feels off, even as she remains hopeful about longer-term outcomes.

via Yahoo|
#advocacy#colon-cancer#colorectal-cancer
Endometriosis: New guidelines push symptom-based, earlier diagnosis Across Specialties
health16 days ago

Endometriosis: New guidelines push symptom-based, earlier diagnosis Across Specialties

ACOG’s updated endometriosis guidance allows clinicians to diagnose and start treatment based on symptoms and exam (no mandatory surgical confirmation), with transvaginal ultrasound as first-line imaging and MRI for later characterization. The recommendations apply to adolescents as well as adults and urge cross-specialty recognition (pediatrics, gastroenterology, urology, internal medicine) to shorten the historically long diagnostic timeline. The shift aims to move care earlier, reduce disease progression and infertility impact, and address systemic barriers highlighted by patient stories like Leah Chapman, who faced years of pain, multiple IVF cycles, and advocacy efforts to improve access and awareness.

via statnews.com|
#advocacy#cross-specialty-care#diagnosis
Two Decades of Pain, One Diagnosis: Endometriosis Finally Found After Gaslighting
health24 days ago

Two Decades of Pain, One Diagnosis: Endometriosis Finally Found After Gaslighting

A 33-year-old woman recounts 20 years of severe pain and dismissal from doctors who urged her to stay on birth control; after multiple ER visits and a decisive gynecologist, she was diagnosed with endometriosis and underwent surgery removing 23 lesions, yielding dramatic pain relief. She now advocates for better medical education on endometriosis and improved insurance coverage for treatments.

via AOL.com|
#advocacy#endometriosis#gaslighting
Missed symptoms spark a young mom's colorectal cancer wake-up call
health1 month ago

Missed symptoms spark a young mom's colorectal cancer wake-up call

Marisa Peters, a mom in her 30s, experienced rectal bleeding and urgent changes in bowel habits that doctors attributed to postpartum effects. After six years she was diagnosed with stage 3 colorectal cancer and underwent extensive treatment; she is now cancer-free and cofounder of the Be Seen nonprofit, advocating for earlier screening as colorectal cancer increasingly affects younger people.

via Business Insider|
#advocacy#colonoscopy#colorectal-cancer
A 37-Year-Old’s Colon Cancer Diagnosis Sparks Call for Early-Onset Awareness
health1 month ago

A 37-Year-Old’s Colon Cancer Diagnosis Sparks Call for Early-Onset Awareness

Allison Solomon was diagnosed with colon cancer at 37 in 2024 and is now in remission after surgery and chemotherapy; she’s advocating with the Colorectal Cancer Alliance as researchers note rising early-onset cases and explore factors like microbiome and birth year; a national survey shows many people are unsure when to start screening, with 45 the current guideline, highlighting the importance of listening to body signals and using colonoscopies to detect and remove premalignant polyps before cancer develops.

via WTOP|
#advocacy#awareness#colonoscopy
Netflix airs posthumous Eric Dane interview, highlighting ALS advocacy and fatherhood
entertainment1 month ago

Netflix airs posthumous Eric Dane interview, highlighting ALS advocacy and fatherhood

Netflix has released a posthumous interview with Eric Dane for the series Famous Last Words, recorded last November, in which he candidly discussed his ALS diagnosis, his role as a father, and his views on mortality. Dane died less than a year after his diagnosis and had become an ALS advocate, lobbying for federal funding and raising awareness; the episode culminates in a personal message to his daughters about being present and loved.

via NBC News|
#advocacy#als#entertainment
Denied abortion leads to prison for a Zambian mother, later freed after rights groups intervene
world1 month ago

Denied abortion leads to prison for a Zambian mother, later freed after rights groups intervene

Violet Zulu, a 26-year-old in Zambia, was sentenced to seven years in 2024 for procuring her own abortion after clinics refused legal care and she couldn't afford private services; she delivered the fetus in a toilet, pleaded guilty after representing herself in court, and was later freed on appeal thanks to intervention by international rights groups. Her case highlights barriers to legal abortion, stigma, and lack of information, underscoring the need for better access and education amid Africa's high rate of unsafe abortions.

via AP News|
#abortion#advocacy#legal-access
Hidden HIV-Linked Anal Cancer: A Survivor’s Call to Break the Taboo
health2 months ago

Hidden HIV-Linked Anal Cancer: A Survivor’s Call to Break the Taboo

An HIV-positive advocate, Daniel Garza, was diagnosed with stage II anal cancer in 2015—likely linked to HIV’s immune suppression and HPV infection. He experienced weight gain despite barely eating, then underwent extensive treatment (radiation, chemotherapy, HBOT) that left him with an ostomy after losing half of his anal sphincter, and he was declared cancer-free in 2017. Garza now channels his experience into advocacy for HIV awareness, anal cancer and HPV education, mental health, and sexuality, urging others with persistent symptoms to seek second opinions and not ignore signs below the belt.

via Daily Mail|
#advocacy#anal-cancer#health
Bedridden at 28: A Hidden CSF Leak Reshapes a Young Woman's Life
health2 months ago

Bedridden at 28: A Hidden CSF Leak Reshapes a Young Woman's Life

A 28-year-old woman, Meredith, describes a life-altering journey after a thunderclap headache and seizure led to a spinal cerebrospinal fluid leak caused by a CSF-venous fistula. The condition leaves her largely bedridden, with upright activity triggering debilitating pain and 95% of days spent lying down. Despite multiple treatments, including blood patches and a brain stent, the fistula makes sealing leaks difficult, and her connective tissue disorder complicates care. She documents her experience on TikTok to raise awareness, push for more research and better treatments, and find moments of normalcy with family and friends.

via Yahoo News UK|
#advocacy#cerebrospinal-fluid-leak#chronic-illness