All articles tagged with #cholangiocarcinoma
Model Sydney Towle, 26, who was fighting cholangiocarcinoma for three years, walked in a May 28 Miami Swim Week show produced by The Chemo Club and Post Swim, just weeks before entering hospice and passing away; her public posts and family notes celebrated resilience and embracing scars as strength.
Influencer Sydney Towle, diagnosed with cholangiocarcinoma (bile duct cancer) in 2023, died at 26 after being moved to hospice care two days earlier; her brother Austin shared that she was 'very at peace' in her final moments, following a public battle that included a Miami Swim Week appearance and participation in a tumor‑infiltrating lymphocyte therapy trial.
Sydney Towle, a 26-year-old social media content creator who documented her battle with cholangiocarcinoma (a rare bile duct cancer) since 2023, died after the cancer spread to her peritoneum and lungs and she transitioned to end-of-life care. Her family shared tributes on Instagram and TikTok, celebrated her advocacy for rare cancers and self-advocacy, and launched a GoFundMe to fund a high school scholarship and a college bench in her memory.
Sydney Towle, a TikTok influencer who chronicled her three-year battle with cholangiocarcinoma (bile duct cancer), has died at 26 after moving to hospice care; she built a large following by sharing chemotherapy, hospital updates, and moments of joy, including modeling at Miami Swim Week, while using her platform to raise awareness for rare cancers and advocate for self-advocacy. Her family and fans paid tribute, and they pledged to honor her legacy by continuing her advocacy.
TikTok creator Sydney Towle, who documented her battle with stage 4 cholangiocarcinoma (bile duct cancer) for more than a year and inspired over a million followers, has died at 26. Her family announced the death in a social post, noting she passed after entering hospice, following surgeries, chemotherapy, and a tumor-infiltrating lymphocyte trial while she kept sharing updates and messages of gratitude with her audience.
TikTok creator Sydney Towle, 26, has entered hospice care while continuing her battle with stage 4 cholangiocarcinoma, a rare bile duct cancer she was diagnosed with at 23. She has shared her journey with more than a million followers, undergoing surgeries, chemotherapy, and a tumor-infiltrating lymphocyte (TIL) immunotherapy trial. An Aug. 4 family update confirmed hospice care, following her last post on July 23 that highlighted support from fans and a note of hopeful perseverance.
Sydney Towle, a 26-year-old TikTok creator documented for sharing her battle with stage 4 cholangiocarcinoma, has entered hospice care with her family by her side after nearly three years of treatment, including chemotherapy and a tumor-infiltrating lymphocyte trial; her brother Austin announced the update on TikTok, noting that she is surrounded by friends and family and that she has attracted more than 1 million followers who have followed her journey.
Keaton Herzer, diagnosed with cholangiocarcinoma, was told he’d remain in lifelong treatment, but a newer targeted therapy shrank his tumors enough to qualify for a liver transplant. Post‑transplant, doctors see no signs of cancer, offering new hope and reshaping his outlook and that of others facing similar diagnoses.
FDA approved Bizengri (zenocutuzumab-zbco) for adults with unresectable or metastatic NRG1 fusion–positive cholangiocarcinoma, the seventh approval under the Commissioner’s National Priority Voucher program. Efficacy comes from a 19-patient single-arm trial showing a 36.8% overall response; safety concerns include infusion-related reactions, interstitial lung disease/pneumonitis, and cardiac effects, with Breakthrough Therapy and Orphan Drug designations previously granted. A June 4, 2026 public meeting will discuss CNPV program details, with written comments due by June 29, 2026.
John Djahanshah Refoua, an Oscar-nominated film editor who worked on Avatar and Avatar: The Way of Water, has died at the age of 62 due to cholangiocarcinoma. Despite his illness, he continued to work on James Cameron's Avatar 3 until his final weeks. Refoua's career as a film editor included titles like Transformers: The Last Knight, The Magnificent Seven, and Southpaw. He also worked on TV shows like Law & Order and CSI: Miami.