
Shanghai Disciplines Scientists After Child Dies in Unreported Gene-Editing Trial
Chinese authorities dismissed two researchers and disciplined others after an investigation found that an experimental gene-editing trial at Shanghai Jiao Tong University led to the death of a six-year-old girl. The study, which targeted a rare neurodevelopmental disorder, lacked public registration and independent safety oversight. While the trial was approved by a hospital ethics committee in January 2025, investigators found that safety warnings from animal testing were ignored, and the child’s death was not disclosed when the team published their findings in February 2026. The case highlights gaps in China’s regulatory framework for investigator-initiated trials, prompting new inspections of biomedical research.












