Tag

Frontotemporal Dementia

All articles tagged with #frontotemporal dementia

Wendy Williams publicly voices desire for freedom from guardianship during rare NYC outing
entertainment4 days ago

Wendy Williams publicly voices desire for freedom from guardianship during rare NYC outing

Wendy Williams, 62, was seen in New York for a rare public appearance amid her ongoing guardianship battle that began in 2022. In a brief exchange with reporters, she bluntly told fans, “I want out,” highlighting how little she has appeared in public since the guardianship began. Williams has faced questions about her health after a 2023 diagnosis of primary progressive aphasia and frontotemporal dementia, though she has disputed having dementia, and her attorney has claimed she does not have FTD. The case remains unresolved as she remains largely out of the public eye.

Wendy Williams publicly pleads to end guardianship in NYC sighting
entertainment5 days ago

Wendy Williams publicly pleads to end guardianship in NYC sighting

Wendy Williams was spotted in New York City telling paparazzi she wants out of her court-ordered conservatorship, marking her first public sighting since February. The 62-year-old has been under guardianship since 2022 due to a diagnosed frontotemporal dementia, with ongoing attempts to end the arrangement including a 2025 lawsuit by her ex-husband and doctors commenting on her diagnosis, though no resolution has been reached.

Brothers Turn Family Tragedy Into a Mission to Fight Rare Dementia
health8 days ago

Brothers Turn Family Tragedy Into a Mission to Fight Rare Dementia

Brothers Jordan (31) and Cian Adams (26) from England face a 99.9% risk of developing frontotemporal dementia—the same rare disease that killed their mother. Through the FTD Brothers foundation they’ve raised about $4 million and built a social following of over 1 million by performing endurance stunts (including a London Marathon with a 55‑lb fridge) to raise awareness and funds for research, with plans like Kilimanjaro climbs to create a lasting legacy before their own symptoms begin in midlife.

Brothers Turn Tragedy Into a Mission: 99.9% Dementia Risk Drives Global Fundraising
health10 days ago

Brothers Turn Tragedy Into a Mission: 99.9% Dementia Risk Drives Global Fundraising

Two brothers, Jordan (31) and Cian (26), both carrying a 99.9% risk of developing the same rare dementia that killed their mother, Geraldine, have launched the FTD Brothers foundation and raised about $4 million by performing extreme endurance stunts and building a social following of over 1 million to raise awareness and fund research. Their feats include the London Marathon carrying a 55-pound fridge, 33 marathons in 33 days, and other endurance challenges, as they push to build a lasting legacy as they confront the disease in the years ahead.

Bruce Willis attends Tallulah's Idaho wedding in rare public outing amid dementia diagnosis
arts-and-entertainment10 days ago

Bruce Willis attends Tallulah's Idaho wedding in rare public outing amid dementia diagnosis

Bruce Willis made a rare public appearance at his daughter Tallulah's Idaho wedding to musician Justin Acee, three years after his frontotemporal dementia diagnosis; the moment was captured in a Vogue photo series showing him embracing Tallulah and her new husband, while Emma Heming Willis has said he may not fully recognize his illness due to anosognosia and Tallulah's wedding weekend underscored the care arrangements for the actor.

Bruce Willis attends daughter's Idaho backyard wedding amid dementia journey
celebrity11 days ago

Bruce Willis attends daughter's Idaho backyard wedding amid dementia journey

Bruce Willis, 71, made a rare public appearance at his daughter Tallulah Willis’s backyard wedding in Sun Valley, Idaho, to Justin Acee, as he continues his battle with frontotemporal dementia; his ex-wife Demi Moore and wife Emma Heming Willis were present, and Tallulah spoke about choosing each other every day for their relationship.

Bruce Willis Shares Tender Moment at Tallulah’s Idaho Wedding Amid Dementia Battle
entertainment11 days ago

Bruce Willis Shares Tender Moment at Tallulah’s Idaho Wedding Amid Dementia Battle

Bruce Willis attended his daughter Tallulah’s outdoor wedding to Justin Acee at the family’s Hailey, Idaho home, sharing a warm moment in a black-and-white Vogue photo in which he hugs Tallulah while Acee shakes hands with him. Tallulah wore a Balenciaga gown with her sisters Scout and Rumer as bridesmaids. Willis, who was diagnosed with frontotemporal dementia in 2023, appeared affectionate and grateful during the wedding weekend, as the bride and groom celebrated their vows.

Bruce Willis stays in 24/7 care as Tallulah Willis’s wedding goes on
entertainment16 days ago

Bruce Willis stays in 24/7 care as Tallulah Willis’s wedding goes on

Bruce Willis, diagnosed with frontotemporal dementia in 2023, remains under round-the-clock care in a single-story home near his Los Angeles area, and did not appear at his daughter Tallulah Willis’s outdoor wedding in Sun Valley, Idaho. Emma Heming Willis said the move to a more comfortable home was to better support his needs while keeping him closely involved with the family, as relatives and friends—including Demi Moore and other celebrities—attended the ceremony.

Early-Onset Dementia Strips Years of Earnings Before Diagnosis
health1 month ago

Early-Onset Dementia Strips Years of Earnings Before Diagnosis

A Finnish registry study shows people who develop early-onset dementia incur substantial pre-diagnostic productivity and earnings losses, totaling about €74,577 (~$86k) per person and averaging around €12k per year. The timing of these losses varies by pathology: frontotemporal dementia begins about 11 years before diagnosis, Alzheimer's about 6 years prior, and alpha-synucleinopathies show declines only at diagnosis, highlighting diagnostic delays and broader socioeconomic impact. The study, which followed 793 individuals with EOD and 7,926 controls, advocates workplace cognitive screening and early interventions; findings are associative and funded by Roche.

Karyoptosis: a nuclear-collapse death pathway linked to Alzheimer's and dementia
health-and-medicine1 month ago

Karyoptosis: a nuclear-collapse death pathway linked to Alzheimer's and dementia

Scientists have identified karyoptosis as a key mechanism by which brain cells die in Alzheimer's disease and frontotemporal dementia. The process involves nuclear shrinkage and breakdown triggered by toxic protein buildup; blocking the p38 MAP kinase-LaminB1 interaction in neuron cultures reduced markers of this death pathway, offering a potential new target to slow neuron loss and progression of dementia.

Untangling Dementia: Misdiagnoses, Modest Treatments, and Real Limits
science1 month ago

Untangling Dementia: Misdiagnoses, Modest Treatments, and Real Limits

The piece argues dementia is a syndrome with several distinct diseases (Alzheimer’s, Lewy body dementia, frontotemporal dementia, vascular dementia). Through Robin Williams and Bruce Willis, it shows how live diagnoses can be wrong, and it critiques the dominant amyloid hypothesis, noting a retraced foundational paper and the mixed success of anti-amyloid drugs that slow decline only modestly and carry risks. It warns against overreliance on new blood tests or supplements that promise certainty or cures, and it emphasizes the value of accurate diagnosis, humane care, harm prevention, and risk-factor management (heart health, hearing, activity, social engagement) as the true, honest path forward.

Emma Heming Willis clarifies Bruce Willis's dementia type, debunking Alzheimer’s misconception
entertainment2 months ago

Emma Heming Willis clarifies Bruce Willis's dementia type, debunking Alzheimer’s misconception

Emma Heming Willis has clarified that Bruce Willis's dementia is frontotemporal dementia (FTD), not Alzheimer's, noting he was diagnosed with aphasia in 2022 and with FTD in 2023; she explains FTD affects behavior and language and that he still recognizes family, while describing his care setup at a single-storey home with a full-time team and pushing back against online criticism of caregivers.

Emma Heming Clarifies Bruce Willis’s Dementia: It’s Not Memory-Only and Comes in Three Variants
entertainment2 months ago

Emma Heming Clarifies Bruce Willis’s Dementia: It’s Not Memory-Only and Comes in Three Variants

Emma Heming explains on The Bossticks that Bruce Willis’s frontotemporal dementia involves three variants—affecting language, behavior, and movement—while memory isn’t the primary issue; she notes FTD is distinct from Alzheimer’s and is more common in people under 60. The Willis family previously announced he had aphasia in 2022 and later disclosed FTD, with no cure, and they hope to raise awareness and research for the disease.